I also would like to bring this forward, the aspect of neuropalliative care with progressive neurodegenerative conditions like Parkinson’s. It’s excellent that this is now being recognized as equally important compared with the traditional palliative care with cancer.
From Pubmed:
1. Fortschr Neurol Psychiatr. 2018 Sep;86(S 01):S30-S33. doi: 10.1055/a-0671-2115.
Epub 2018 Sep 21.
[b][Neuropalliative care aspects in patients with Parkinson's disease].[/b]
Eva Weck C(1)(2), Lorenzl S(1)(3)(2).
Author information:
(1)Institut für Pflegewissenschaften der PMU Salzburg.
(2)Krankenhaus Agatharied.
(3)Klinik und Poliklinik für Palliativmedizin der LMU München und Abteilung für
Neurologie und Neuropalliative Care.
Palliative Care in Parkinson's Disease (PD) is of growing interest. The burden of
symptoms of late-stage PD patients is similar or even higher than those of
patients suffering from oncological diseases. However, patients suffering from
advanced phases of PD have tremendous unmet palliative care needs. The disease
trajectories are often difficult to define, and initiation of palliative care
approach has to be chosen carefully. Swallowing difficulties define the onset of
the late and palliative phase and have to be seen as a landmark for palliative
care involvement. Here we provide an approach to palliative care in PD in the
final phase and also care for the relatives.
DOI: 10.1055/a-0671-2115
PMID: 30241098